Photo: Madison Brush Instagram
Janelle Brown’s granddaughter is finding her independence.
The video spotlighted Evie’s ability to maneuver the parts onto her leg without help from an adult. “This sweet girl puts on her prosthetic herself for the first time. I feel like an older sibling.. and I don’t know her,” they wrote. “So proud! You got this! ❣️”
Madison Brush Instagram
“I put this on my stories, but I also felt it needed to be shared on my main feed! This is our life!” she captioned the video. “It’s normal, but not normal. I found myself asking if it was even ok to paint the toes of her prosthetic. So weird that I felt I needed to ask…. But I guess it’s somewhat normal. How do you navigate, how do you make her feel normal, but also not invalidated.”
Evie wasdiagnosed with a congenital abnormalitycalled oligodactyly before she was born. In utero, Evie was expected to be missing a finger, but a few other limbs were affected. She was missing a thumb and a toe, and one leg was missing a fibula (commonly known as the calf bone) and also had a bowed tibia (shinbone). The reason appeared to be fibular aplasia, tibial campomelia and oligosyndactyly (FATCO) syndrome.
Janelle has shared a little about her relationship with Evie and grandsonAxel James Brush, 5. “Everything they say about being a grandparent is so true,” Janelle captioned and Instagram photo with Evie. “Who knew?!?!”
“Evie is so sweet,” she continued. “She always insists on giving me a bite of whatever she is eating.”
source: people.com
